I struggle with time management and getting everything in that I need too to take care of myself. In the perfect day I am suppose to incorporate the following:
– drink 2 tbsp. Of slippery elm with 2 quarts of boiled water – how do I do this at work to get it all in?
– L-glutamine – do-able but I am slacking
– 1/4 teaspoon with probiotic x 2 a day -I do this
– fiber flow x 2 a day ( I do this)
-vitamin b and adrenal tincture x 3 a day – I do my best here- its more like 1-2 my memory fails me
– vitamin C x 3 a day – fallen off the bandwagon
On top of meal prep for lunch- which I have doing well at. So I do that at night to prepare for next day.
– also suppository at night – I do that
– protein powder x 2 scoops a day- I don’t do. It is suggested in smoothies but I don’t get up early enough to do and too tired to do at night? Any other suggestions?
– castor oil to rear x 20 -30 min soak- fallen off the band wagon
– Epsom salt bath daily – I do a few times a week
How do I balance working 6 days a week, sanity, and finding the time and energy to fit all this in so I can function like a normal person. I want to feel better and need to try harder. I am envious of those that can eat what they want and don’t put much effort into a comfortable existence.
I am open to suggestions.
Thanks for reading. 🙂
Published by jcrohnie715
Hi! My name is Jacquie... you can call me... Jacquie, Jax, Jack, JC, jcrohnie, or whatever other clever nickname you can come up with! :) I am always open to new nicknames. I recently turned 30 and I am not sure how I feel about it yet, lol.
I also have Crohn's disease. I was diagnosed when I was 16 years old. It's been a roller coaster ride to say the least. I currently live my parents as I try to manage my health. I also have two dogs that I love more than anything.
I intend to share my realities about living with Crohn's disease... even the gut wrenching details. I suffer from multiple GI and non-GI symptoms related to crohn's disease. I had surgery in 2007 to have 2 feet of my colon removed. I was in remission for 5 years and now symptoms are back as fierce as ever. I tend to find the humor in most of my everyday life- so I plan to share my humor with you. I plan to share the realities of anxiety and depression as well. I tried to be so resilient to both anxiety and depression... but the truth is it happens. It makes me human... not super girl! Which is good because I don't think I could sport spandex and a cape, lol. :) Anyways, I intended to share my everyday adventures and misadventures, diet and lifestyle changes, holistic approaches I try, medications, symptoms, and life with Crohn's!
Happy reading and thanks for stopping by my blog!
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gut-wrenching truth about crohns 
Wow – that is a lot to juggle! I have been there where you take so many different things. I end up making a schedule like… am, mid-day and night on paper and try to space it all out.
Every try drinking aloe – Like real quality aloe that is supposed to be consumed? I have a friend on facebook who claims to be somewhat cured from drinking this product daily.
I am going to go through a natural doc who is going to do a stool examination to find out what is missing – enzymes, probiotic strains, vitamins, undigested food. The goal is to then add in supplements and foods that would lead me to be like the normal person. Fecal tests at the docs only look at pathogens and thats it. Should be interesting
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I get it! I have to work really hard just to try to stay stable!
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Heidi- that’s exactly it! A ton of work just to be stable and “appear” normal! Its frustrating sometimes to watch others take their health for granted! 🙂
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That is a lot! I”m sorry that you are going through all of this. I do understand the bit about eating because I can’t. It, literally, makes me physically ill. I currently have my second feeding tube. It was placed last July. I had the first one in 2010 for 9 months. One of my many diseases is Gastroparesis. It’s not curable. Some people go in and out of remission, but I’m one of those that gets to endure this struggle daily. I’m afraid that I’ll have to have a feeding tube all the way til I take my last breath. Now, I’m not forbidden to put anything in my mouth, as I am instructed to try small amounts, here and there, because it’s that “use it or lose it” thing, so I try and I get sick and horribly distended and a bunch of other nasty things. I do just wish that I could eat like a normal person. Oh the things people take for granted, right? I wish you the best on your journey. I’m here if you ever want to talk, vent or whatever you need to do. I get most of my support here at WP.xxx Tammy
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Oh are one strong woman to be dealing with all of this! May I ask what the symptoms of gastroparesis are? I have a cousin who was recently diagnosed with this and I am sure what it is or what a person experiences and I think it would be easier for me to understand coming from someone who is dealing with this diagnosis! Wishing you health and happiness! Thank you for your support! 🙂
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Hi there! I would be happy to tell you about gastroparesis. First, it is very common in diabetics, of which I am not. I have what they call idiopathic gastroparesis. That means they don’t know what the cause of mine is. In our stomach we have a vagus nerve and this nerve is responsible for motility. It means that this nerve is basically paralyzed. In a normal person the food empties into the small intestines within 90 minutes of eating. I have severe gastroparesis. When I eat, the food stays in my stomach for well over 8 hours. This causes nausea, a sense of fullness, bloating, abdominal pain and cramping, and constipation that may alternate with diarrhea. Liquids go through easier, but I still cannot drink enough because I get too full and I’m almost always dehydrated. I was constantly being hospitalized for dehydration and malnourishment and rapid weight loss. I also have IBS, which complicates matters worse because the diet for IBS is the total opposite of the diet for gastroparesis. If you have gastroparesis you are supposed to have a no or low fiber diet because it sits in the stomach and takes longer to break down and move through and can cause the formation of what they call bezoars (they explain it like a furball in a cat) This bezoar can then block the part of the stomach where the food exits into the small intestine. You should try to eat 6 very small meals a day and to keep hydrated. It doesn’t matter what I eat, it makes me sick. A lot of people with gastroparesis throw up. I never throw up, I am just severly nauseated all the time, which makes eating very difficult for me. After just a few bites the gastroparesis patient feels very full and nauseated and many
throw up. We get bloated and are often constipated. If you cannot get enough nourishment and are malnourished and almost always dehydrated and losing weight your
GI doctor will recommend a feeding tube. There are different kinds of feeding tubes. I have a JG Peg feeding tube. The feeding tube bypasses the stomach and goes directly into the small intestine. I have a formula called 2 cal HN that is placed in a bag, put in a back pack with a pump that pumps the formula into my body. You must keep the area around where the feeding tube enters the abdomen clean and bandaged to prevent infection. The feeding tube should be replaced every 3 to 4 months. In fact, I’m getting ready to have mine replaced, again, on March 31st. If you have any further questions, please feel free to ask. I”m pretty much an expert on it, unfortunately. There are many other things I would prefer to be an expert on. Oh, and the way to get diagnosed is by having a gastric emptying test done. This is where you eat a meal such as scrambled eggs, toast, and juice with radiation in it. You then lay on a table as they watch how fast or slow the stomach empties into the small intestines. The test can take hours depending on how slow your stomach empties. Some days I’m not even able to tolerate a tube feeding. It usually runs for anywhere from 8-12 hours for a tube feeding to finish. I just put my back pack on and away I go. I prefer not to do it at night because the pump likes to beep at times and I also suffer from insomnia so if I’m lucky enough to get any sleep, I don’t want to be woke up in the middle of the night to figure out what the malfunction is. I hope this was helpful and like I said feel free to ask any more questions you may have. Have a great day. 🙂
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